Still waiting......

First of all I want to celebrate the fact we managed to go 2 whole weeks without having to go to a hospital for bloods or any emergency admissions, whoo hoo! We went for bloods and a clinic appointment on Monday and all her bloods are perfect, go Erin! It was the least stressful blood draw yet, we have a new favourite sampler in the form of a nurse in outpatients who managed to get all 17mls required in one stick and just a few minutes, unheard of from our little stone, looks like ''the vein'' has recovered from her last admission.

Things have not all been rosy however. Jamie rang ENT last week to chase up when the surgery might be scheduled for only to be told Erin was placed on the routine waiting list (again) so it would probably be another 8 weeks, grrrrrrrrrr and double grrrrrrrr (I was less polite at the time). After speaking to the ENT secretary for 2 minutes he managed to get this brought forward to the 30th May. Quite how this wasn't possible for our liver Dr's to arrange is beyond me however after a few heated discussions about the dreadful way this has all been handled she is also on the cancellation list so out fingers are crossed it might be earlier than the 30th, although we would only get 24 hrs notice if a place became available. So the tricky thing is now to try and keep her well enough to 'pass' the anaesthetist at all times.

She is still barely sleeping (zzzzzzzzzz) but is managing to eat a bit better. We have had no new food reactions either which is a big positive.

We are keeping away from other kids just now to prevent infection (apparently chicken pox is doing the rounds here) so we got her an early birthday pressie which has made her very happy as you can see.

 

still loving her play house