We also had a call yesterday from Leeds to say we are booked in for the assessment week from the 17th January. In the mean time I've been banned from googling anything to do with transplants. We are determined to enjoy Christmas and not going to mention livers, hospitals or transplants!
This blog is the story of Erin, who was diagnosed with the paediatric liver disease Biliary Atresia at 6 weeks of age. She had a liver transplant at 6 months old thanks to a very kind and generous donor. This story is primarily for friends and family who would like to follow her progress but also for anyone who is affected by this life changing illness.
Thursday, 23 December 2010
We have a date for Leeds
Erin had the first of her inoculations yesterday and was so brave. She slept for most of the day afterwards. We also had a visit from the community children's nurse who is now involved in Erin's care. It is a full time job managing Erin's drugs, medical appointments and feeds at the moment and in-between it all we've still got a sick baby to look after, we have never been so busy!
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So pleased that things are going well for you - Erin is absolutely lovely - you must be so proud of her - lots of love to you all plus beagles
ReplyDeleteLynda
Erin is beautiful! thanks for sharing all the info... I am so willing and praying for her to get better every day! You are both wonderful parentsx
ReplyDeleteLiz
Hope you had a lovely Christmas. God Bless. Esmary
ReplyDeleteErin is just gorgeous.It amazes me that in her pics she is smiling with all she is going through.My thoughts are with you all,Erin is a wee angel and she is so lucky to have you both as parents xxx big hugs FRANCES DENHOLM
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